To combat Ebola, first build back trust in healthcare workers

By Celine Gounder
July 30, 2014

Medical staff working with Medecins sans Frontieres prepare to bring food to patients kept in an isolation area at the MSF Ebola treatment centre in Kailahun

The worst-ever outbreak of Ebola is spreading out of control in Guinea, Liberia, Sierra Leone, and now Nigeria, where almost 700 people have already died from the virus. Healthcare workers caring for Ebola patients have themselves fallen victim to the disease, including two American physicians.

And, at its root, the size of this outbreak can be blamed on a lack of trust in healthcare workers.

Ebola is spread through direct contact with an infected person or their body fluids, which may include sweat, blood, urine, feces or vomit, making it difficult to contain outside of proper medical facilities.

There is no cure for Ebola, though supportive measures like intravenous fluids and antibiotics may be helpful in treating some of the complications of the disease. There is no vaccine to halt the spread of the virus. The only way to stop the transmission of Ebola is to identify and quarantine infected persons.

But people aren’t likely to come forward with a deadly, stigmatized infectious disease when there’s an absence of trust.

In the African nations currently experiencing the outbreak, patients don’t trust their local healthcare systems – sometimes with good reason. Their clinics and hospitals are understaffed and have inadequate stocks of drugs and other supplies. Healthcare workers suffer from poor morale in difficult working conditions. In such settings, people turn to traditional healers. These healers may not be able to cure their illnesses, but they offer care and empathy that healthcare workers may not.

Affected communities don’t trust the foreign doctors who have come to help treat patients with Ebola, sometimes because they believe they are the very source of the disease. They conflate healthcare workers’ arrival to help treat Ebola with the coming of the illness itself.

Ebola’s harsh outcomes do nothing to inspire trust. Those who are hospitalized for Ebola — often too late in the course of disease, when mortality rates may be as high as 90 percent — are more likely to come out in a body bag than alive.

Families have been told not to care for sick relatives or to engage in traditional burial practices because of fears of contagion, but lack of trust leads communities to hide the sick from medical attention,. When they come to help, Doctors Without Borders and Red Cross workers have been threatened and attacked by locals suspicious of their activities.

Of course, it’s not just the healthcare system people don’t trust. Ebola is spreading in countries that have suffered from poor governance and civil war, where people don’t trust their own public officials, adding to the chaos.

The question is, how do you create trust?

Efforts to fight other stigmatized infectious diseases, like HIV and tuberculosis, have taught us that advocates from affected communities have an important role to play. Public health workers need to enlist the help of recovered patients and their families to speak about their experiences with medical treatment for the disease. Religious leaders and traditional healers should also be recruited and trained to educate communities about Ebola.

In the absence of trusted spokespersons, Ebola will continue to spread. Halting transmission of the Ebola virus will require isolation of infected persons. And no one will submit to quarantine if they believe that foreign aid workers are spreading the virus or that they are being doomed to die horribly and alone without their families at their bedsides.

PHOTO: Medical staff working with Medecins sans Frontieres (MSF) prepare to bring food to patients kept in an isolation area at the MSF Ebola treatment centre in Kailahun July 20, 2014. REUTERS/Tommy Trenchard

287 comments

We welcome comments that advance the story through relevant opinion, anecdotes, links and data. If you see a comment that you believe is irrelevant or inappropriate, you can flag it to our editors by using the report abuse links. Views expressed in the comments do not represent those of Reuters. For more information on our comment policy, see http://blogs.reuters.com/fulldisclosure/2010/09/27/toward-a-more-thoughtful-conversation-on-stories/

The world needs to totally isolate Ebola infected countries. Why doesn’t Jonathan Goodnight spray Boko Harem with the Ebola?

Posted by Doc62 | Report as abusive

Not A Good Way To Die

“I looked, and there before me was a pale horse!
Its rider was named Death, and Hades was following close behind him.” -Revelation 6:8

The hemorrhagic fevers, including Ebola, are extremely virulent, killing gruesomely but quickly. Their extreme virulence has kept them contained geographically … until now.

Worse, Ebola is a retrovirus composed of RNA not DNA. HIV is a retrovirus. Of note, both arose out of sub-Saharan Africa. Retroviruses can mutate rapidly. There is no guarantee that a vaccine effective today will be effective tomorrow … think influenza.

Unfortunately, Ebola and other deadly hemorrhagic fevers are endemic to so-called nations that are incapable of handling their own affairs without the assistance of former colonial powers and their allies … the self-loathing West. Well, Nature cares not one whit about ideology. As the human population swells and clusters, we in the West may face an unpleasant choice … colonialism or annihilation … survival or ideology (www.nationonfire.com).

Find this comment abhorrent? Watch your child, another loved one, or you yourself bleeding from the mouth … bleeding from the eyes … while dying from Ebola if you really want a taste of the abhorrent.

Posted by BioB_View | Report as abusive

EU paid couple billion for the medics release in Libya just to get them of the News .The were convicted for intentionally infecting 400 kids with HIV. Their excuse was not enough needles for vaccination.

Posted by Macedonian | Report as abusive

This article raises the interesting point (accidentally, I think) that recovered victims of ebola would be the perfect individuals to treat the sick because they would be less likely to catch and retransmit the virus.

Posted by thomasreut | Report as abusive

Too bad the CIA poisoned the well of trust for medical workers.

http://www.scientificamerican.com/articl e/how-cia-fake-vaccination-campaign-enda ngers-us-all/

Posted by OldPharting | Report as abusive

Our desire to do good and keep people alive prevents diseases from burning themselves out.
When they are allowed to run their course, we end up with people with more immunity and allow the normal life and death cycle to assert itself to control the overpopulation of the planet.

Posted by emm305 | Report as abusive

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Posted by First Ebola Patient Returns to U.S., But Don’t Freak Out | Just A Tricks Archive | Report as abusive

[…] geral, as pessoas infectadas se recusam a procurar ajuda médica para o ebola – os hospitais não têm funcionários o bastante para cuidar dos pacientes – e preferem […]

Posted by O que é o ebola, e por que uma epidemia global é muito menos provável do que você imagina – TabeladeCarros.net | Report as abusive

[…] geral, as pessoas infectadas se recusam a procurar ajuda médica para o ebola – os hospitais não têm funcionários o bastante para cuidar dos pacientes – e preferem […]

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Posted by No, The Man Tested for Ebola in NYC Does Not Have Ebola | Social Dashboard | Report as abusive

[…] geral, as pessoas infectadas se recusam a procurar ajuda médica para o ebola – os hospitais não têm funcionários o bastante para cuidar dos pacientes – e preferem […]

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[…] have struggled to contain the virus. Many citizens in all three countries seem to have lost faith in health care workers, and are reticent to report Ebola symptoms to officials that they […]

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[…] of the fear surrounding Ebola has destroyed so much of the trust in healthcare providers there. (http://blogs.reuters.com/great-debate/2 014/07/30/efforts-against-ebola-outbreak -hampered-by-victims-…) When people lose trust in those who want to help them, health and healthcare can so easily […]

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[…] don’t trust their internal health caring systems – infrequently with good reason,” Reuters reported in July. Locals mostly spin to normal healers, definition their central diagnoses are never […]

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