Comments on: Living with Fragile X http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/ What makes a great picture? Thu, 18 Aug 2016 11:13:37 +0000 hourly 1 http://wordpress.org/?v=4.2.5 By: allsmyalls http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/comment-page-1/#comment-348869 Sat, 02 Jun 2012 16:54:31 +0000 http://blogs.reuters.com/photographers-blog/?p=29252#comment-348869 Thank you so much, Jim, for putting together such a wonderful piece. It was so wonderful to work with you and have you here with our family.
Thank you for sharing in our hope. And you are welcome back anytime! :-)

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By: pfasciano http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/comment-page-1/#comment-348825 Fri, 01 Jun 2012 12:13:52 +0000 http://blogs.reuters.com/photographers-blog/?p=29252#comment-348825 A great story about the difficulties of living with Fragile X. Beautifully told story, and Holly Roos is a tireless champion for Fragile X and should be recognized. Thanks for putting this story out there for all to see!

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By: ajmz http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/comment-page-1/#comment-348819 Fri, 01 Jun 2012 01:49:09 +0000 http://blogs.reuters.com/photographers-blog/?p=29252#comment-348819 love, love, love this story! We have an amazing son, Abraham, who has Fragile X syndrome, and it is because of this research and subsequent drug trials that we have such HOPE for our future! Thank you so much for showing the ups and downs of everyday life, and the amazing love that Holly, Allison, and Parker all share.
I can’t wait to read more about the molecular interventions that are being developed to treat the biological causes of FX!!

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By: blesdmomof4 http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/comment-page-1/#comment-348818 Fri, 01 Jun 2012 00:47:24 +0000 http://blogs.reuters.com/photographers-blog/?p=29252#comment-348818 Great blog and beautiful pictures! So thankful for advocates of Fragile X Syndrome – now you are included in the family Jim!

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By: FXSDAD http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/comment-page-1/#comment-348817 Thu, 31 May 2012 15:36:47 +0000 http://blogs.reuters.com/photographers-blog/?p=29252#comment-348817 I really enjoyed this article, As a father of a child with FXS I understand how exciting, stressfull, and challenging it really is. Keep up the great work Holly, you are definately an inspiration. Best of luck, Joseph.

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By: mwelin http://blogs.reuters.com/photographers-blog/2012/05/31/living-with-fragile-x/comment-page-1/#comment-348816 Thu, 31 May 2012 15:14:16 +0000 http://blogs.reuters.com/photographers-blog/?p=29252#comment-348816 This is wonderfully done, you’ve captured the love of this amazing family!

Those of us living with fragile X look to Holly for support, knowledge and, maybe most importantly, inspiration. The hope that Parker’s progress has generated has inspired many families to join the clinical trials…the impact of this little boy and his mom is truly astounding.

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