When progress trumps privacy

By Reihan Salam
December 2, 2013

In 1890, two of America’s leading legal minds, Louis Brandeis and Samuel Warren, published an article called “The Right to Privacy” in the Harvard Law Review. Scandalized by the rise of a gossip-mongering press that intruded on the lives of prominent citizens, they called upon the courts to recognize a “right to privacy.” Their fear was that new technological and commercial innovations — in this case photography and the mass-circulation gossip rag — would cause the rich and famous untold mental pain and distress. As Stewart Baker observes in his provocative book Skating on Stilts, the substance of Brandeis and Warren’s argument now seems rather quaint, as a gossipy news media has become a central part of our public life. In Baker’s telling, “the right to privacy was born as a reactionary defense of the status quo.” And even now, he argues, privacy campaigners often overreact against new technologies they fear but do not understand.

Baker’s argument has been panned in civil libertarian circles. When he suggests that societies eventually adapt to new technologies — that “the raw spot grows callous” as we grow accustomed to invasions of privacy — privacy campaigners reply that it is Baker who has grown callous to the harms in question. Baker’s central goal is to convince Americans to accept that government must use new technological tools, like the data mining programs used by the National Security Agency, to combat mass-casualty terrorism. His critics maintain that he is far too glib about the potential that government might abuse these new tools, and indeed too dismissive of the notion that it has already done so.

I’m torn on the question of whether the national security state has overstepped its bounds, and there are people I respect on both sides of the debate. Civil libertarians like Ben Wizner of the American Civil Liberties Union and Julian Sanchez of the Cato Institute see the new Leahy-Sensenbrenner USA FREEDOM Act– which would end the dragnet collection of Americans’ phone records under the PATRIOT Act, and limit other surveillance — as an important step towards reining in a bureaucracy run amok. Baker fears that it will cripple the ability of U.S. intelligence officials to prevent future terror attacks. I couldn’t tell you which side is closer to the mark.

What is increasingly clear to me, however, is that privacy concerns are limiting our ability to flourish as a society for reasons having nothing to do with NSA surveillance.

The Food and Drug Administration recently ordered one of America’s most popular consumer genonics firms, 23andMe, to cease selling and marketing its direct-to-consumer DNA test on the grounds that it is a medical device subject to FDA approval. The FDA’s case seems pretty flimsy. The saliva collection kit that 23andMe offers through its Personal Genome Service is utterly harmless, and no one is claiming otherwise. Rather, the FDA is concerned that by giving its consumers data on disease risks, complete with plenty of disclaimers, it may prompt them to seek unnecessary MRIs and mastectomies, as Christina Farr of VentureBeat reports. The obvious rejoinder to these concerns is that consumers don’t have the option, for better or for worse, of operating on themselves. They generally need a medical practitioner to sign off, and medical practitioners hardly suffer from a lack of licensing and regulation. The FDA seems to be engaging in a senseless power grab.

The reason this matters is that 23andMe represents just the first step of the coming consumer genomics revolution. Recently, Razib Khan and David Mittelman outlined the future of consumer genomics in a short article in Genome Biology. First, Khan and Mittelman expect that startups like 23andMe, which offer consumers basic information about their ancestry and genealogy, to grow more popular as the costs of their DNA tests continue to plummet. Then these vast databases will be used to yield real scientific insights, as biomarkers record how we respond to the food we eat and the activities we undertake, and this data “is intersected with millions with varying levels of genetic relatedness and lifestyle.” The result will be “a perpetual stream of novel insightful predictions,” and Khan and Mittelman see this future as all but inevitable. Yet for this future to become a reality, consumers will have to grow more comfortable with sharing their personal medical data. One of the reasons Americans are so sensitive about sharing this data is that many of them fear becoming uninsurable, a fear that universal coverage will (hopefully) do much to allay. If privacy concerns win the day, the marriage of big data and personal genomics might never come to pass — and our best hope for achieving medical breakthroughs in the decades to come will be dashed.

It’s not just a desire for medical privacy that’s getting in the way of progress. U.S. higher education institutions have fought tooth and nail against efforts to build a unified database of “student unit records” — collected throughout a student’s educational life, and anonymized –  that can allow taxpayers, parents, and students to see how different kinds of students have fared at different colleges and universities. As Kevin Carey, director of education policy at the New America Foundation, has argued, higher education institutions understand that if this data is released, the federal government can hold them accountable for their performance. For example, a student unit record system will reveal which schools do the best and worst job of educating low-income students who receive Pell Grants.This is a prospect that keeps higher education administrators up at night, and with good reason, as it threatens the flow of federal dollars to subpar educational programs.

So how do the higher education institutions get away with keeping Americans in the dark about how well they are educating U.S. students? It’s simple. Critics of a federal student unit record system warn that it represents a threat to student privacy — determined sleuths might be able to figure out the grades and household income levels of individual students, despite efforts to anonymize the data. And though there are many techniques schools and governments can use to protect privacy, it really is true that data anonymization is a hard problem to solve. The question is whether we should put privacy ahead of the goal of building a more efficient and equitable higher education system.

Privacy matters. But so do the things we give up when we let the fear of invasions of privacy stymie the development of promising new technologies.

PHOTO: Demonstrators wearing cardboard surveillance camera hats carry a sign depicting U.S. President Barack Obama at the “Stop Watching Us: A Rally Against Mass Surveillance” march in Washington, October 26, 2013. REUTERS/Jonathan Ernst

10 comments

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Right, let us start with you. Please publically share everything you ever googled, all your sms’s with your ex wife, your bank statement and your collection of erotic French lithographs.

Posted by BidnisMan | Report as abusive

“The result will be ‘a perpetual stream of novel insightful predictions,’ ” *** Replace the word ‘predictions’ with ‘discriminations’ and you are closer to the truth. Those whose intellects are challenged at a genetic level, like some opinion writers, will be prevented from submitting pieces even before they are penned. The movie Gattaca gives a good glimpse at the future with technology and no privacy.

Posted by BidnisMan | Report as abusive

@BidnisMan, there is safety in numbers. No one wants to know personnel information to be used against you except potential employers. The government, educational and medical institutions want statistics. Your fear comes from social training. Corporate America want your personnel information far more than anyone else and that is strictly for targeted marketing and sales. If they found out you were a murderer there automated routines would merely try to sell you a gun and a night sight.

Posted by tmc | Report as abusive

When it comes to government practices and our tax dollars, there should be availability of data. Why should we, the payers, not be allowed to see if our tax dollars are being wasted on projects that have proven a waste of time and money?

TRANSPARENCY when it comes to government-funded projects!

Posted by AZreb | Report as abusive

My hope is that this author isn’t American. If he is, he and his ilk should get ready for dogfight opposition.

Posted by sarkozyrocks | Report as abusive

I’m not sure it is progress that trumps privacy. Perhaps it is population density? Maybe unregulated Capitalism?

Posted by tmc | Report as abusive

NSA are partnering with Virginia State Police and local police and are torturing innocent citizens. Read “A Note on Uberveillance” by M. D. Michael. Newport News Police and Virginia State Police had a doctor implant me w/o my knowledge and consent with a biochip. A U. S. Attorney for the NSA/DOJ pretended to be my attorney. It enables torture and thought monitoring. They use it as a sensor and pulse energy projectiles at you. I had a heart attack. It enables voice to skull communication. See LRAD white papers or audio spotlight by Holosonics. See Safeguards in a World of Ambient Intelligence by Springer page 9. See Mental Health and Terrorism by Amin Gadit. See Bio Initiative Report 2012. See Forbes and search Brandon Raub. Law enforcement tases citizens into “excited delirium” (see at nij org) to make them act in ways they normally would not. I believe they are directly responsible for the Virginia Tech massacre. There are 3 reasons to have it implanted 1) mental health, 2) criminal record, and 3) infectious disease. If you don’t meet any of those requirements like me, they’ll falsify your records. All the mass shootings are the work of law enforcement. They want to take away your right to bear arms and make America a police state. People aren’t suddenly going crazy, they’re being tortured. I also believe the biochip to be responsible for PTSD. Read Brian Castner’s book “A Long Walk”. I have the same ambiguous pains, twitches, heart attack, night mares, day mares, gurgling, etc. I never served in the war. What do we have in common? The biochip. Suicide is one way to get relief. Virginia’s suicide rate is higher than the national average and the military suicide rate is unacceptable!

Posted by SJmithB | Report as abusive

NSA are partnering with Virginia State Police and local police and are torturing innocent citizens. Read “A Note on Uberveillance” by M. D. Michael. Newport News Police and Virginia State Police had a doctor implant me w/o my knowledge and consent with a biochip. A U. S. Attorney for the NSA/DOJ pretended to be my attorney. It enables torture and thought monitoring. They use it as a sensor and pulse energy projectiles at you. I had a heart attack. It enables voice to skull communication. See LRAD white papers or audio spotlight by Holosonics. See Safeguards in a World of Ambient Intelligence by Springer page 9. See Mental Health and Terrorism by Amin Gadit. See Bio Initiative Report 2012. See Forbes and search Brandon Raub. Law enforcement tases citizens into “excited delirium” (see at nij org) to make them act in ways they normally would not. I believe they are directly responsible for the Virginia Tech massacre. There are 3 reasons to have it implanted 1) mental health, 2) criminal record, and 3) infectious disease. If you don’t meet any of those requirements like me, they’ll falsify your records. All the mass shootings are the work of law enforcement. They want to take away your right to bear arms and make America a police state. People aren’t suddenly going crazy, they’re being tortured. I also believe the biochip to be responsible for PTSD. Read Brian Castner’s book “A Long Walk”. I have the same ambiguous pains, twitches, heart attack, night mares, day mares, gurgling, etc. I never served in the war. What do we have in common? The biochip. Suicide is one way to get relief. Virginia’s suicide rate is higher than the national average and the military suicide rate is unacceptable!

Posted by SJmithB | Report as abusive

NSA are partnering with Virginia State Police and local police and are torturing innocent citizens. Read “A Note on Uberveillance” by M. D. Michael. Newport News Police and Virginia State Police had a doctor implant me w/o my knowledge and consent with a biochip. A U. S. Attorney for the NSA/DOJ pretended to be my attorney. It enables torture and thought monitoring. They use it as a sensor and pulse energy projectiles at you. I had a heart attack. It enables voice to skull communication. See LRAD white papers or audio spotlight by Holosonics. See Safeguards in a World of Ambient Intelligence by Springer page 9. See Mental Health and Terrorism by Amin Gadit. See Bio Initiative Report 2012. See Forbes and search Brandon Raub. Law enforcement tases citizens into “excited delirium” (see at nij org) to make them act in ways they normally would not. I believe they are directly responsible for the Virginia Tech massacre. There are 3 reasons to have it implanted 1) mental health, 2) criminal record, and 3) infectious disease. If you don’t meet any of those requirements like me, they’ll falsify your records. All the mass shootings are the work of law enforcement. They want to take away your right to bear arms and make America a police state. People aren’t suddenly going crazy, they’re being tortured. I also believe the biochip to be responsible for PTSD. Read Brian Castner’s book “A Long Walk”. I have the same ambiguous pains, twitches, heart attack, night mares, day mares, gurgling, etc. I never served in the war. What do we have in common? The biochip. Suicide is one way to get relief. Virginia’s suicide rate is higher than the national average and the military suicide rate is unacceptable!

Posted by SJmithB | Report as abusive

NSA are partnering with Virginia State Police and local police and are torturing innocent citizens. Read “A Note on Uberveillance” by M. D. Michael. Newport News Police and Virginia State Police had a doctor implant me w/o my knowledge and consent with a biochip. A U. S. Attorney for the NSA/DOJ pretended to be my attorney. It enables torture and thought monitoring. They use it as a sensor and pulse energy projectiles at you. I had a heart attack. It enables voice to skull communication. See LRAD white papers or audio spotlight by Holosonics. See Safeguards in a World of Ambient Intelligence by Springer page 9. See Mental Health and Terrorism by Amin Gadit. See Bio Initiative Report 2012. See Forbes and search Brandon Raub. Law enforcement tases citizens into “excited delirium” (see at nij org) to make them act in ways they normally would not. I believe they are directly responsible for the Virginia Tech massacre. There are 3 reasons to have it implanted 1) mental health, 2) criminal record, and 3) infectious disease. If you don’t meet any of those requirements like me, they’ll falsify your records. All the mass shootings are the work of law enforcement. They want to take away your right to bear arms and make America a police state. People aren’t suddenly going crazy, they’re being tortured. I also believe the biochip to be responsible for PTSD. Read Brian Castner’s book “A Long Walk”. I have the same ambiguous pains, twitches, heart attack, night mares, day mares, gurgling, etc. I never served in the war. What do we have in common? The biochip. Suicide is one way to get relief. Virginia’s suicide rate is higher than the national average and the military suicide rate is unacceptable!

Posted by SJmithB | Report as abusive